Sunday, February 15, 2015

High Functioning Autism with a touch of Synesthesia in action.

 Being within the Autism Spectrum you probably have been unconsciously aware that there are many and varied gifts, talents and acceptances.  Each of these have many and varied levels within them as well.  Let's look at the following story to see Synesthesia in action.

 Living within High Functioning happens to have it's quite profound ups and downs with regard to every day acceptances, attitudes and even noticing the noticing of how big exactly you are making that hole you are about to jump in and keep digging! Even through these the reactive or proactive procedures that you tend to get yourself   involved with are so often triggered through a multitude of what appear unrelated incidents.  Then wham you have done it again.

This post may seem like a ramble [ probably is] however the objective is to give an overall method of approach to understanding what happens with situations of passive-aggression from the 'wearers' point of view'.  What I am about to use are examples and happenings within my own life.  Should anyone recognise that it was them that I am explaining then please accept my apologies in advance.  With a few basic changes, I am attempting to not make you identifiable while still being truthful.

While at my local shopping centre a few years ago I went up to a young mother who had a toddler in the pushchair.  I smiled and stated " I am jealous of your child" The look of total bamboozlement on the ladies face ... so I went on to say "The plastic casts on his legs I am jealous of those."  At that point she near burst into tears.  I was not fully conscious of this, however her husband was.  He in turn became very protective of what he saw as a threat to his family.  As he rightly should have done.  Meanwhile I was still staring in wonder at the plastic foot and leg casts

What I did not know was how upset the two were that their child had been fitted with booth feet having lower foot and leg plastic casts. The prognosis was not good as to the length of time this child would need to wear the plastics vertical half casts.

Luckily I did become aware.  I asked for them not to leave .  Instead to let me explain my comment.

Firstly that when I was born I also had both feet with Talipes [ club feet] as well as dislocating hips.

Secondly that along with that I was born with High Functioning Autism / Aspergers.  The result of which at times gets my mouth into trouble as the brain is otherwise occupied with mental overload.  "Would they let me clarify my comment. Please?"  He nodded and tentatively turned towards me.  I noted though the pushchair was still facing going forward and away while he was also holding into himself his wife. The mother of that child.

Must admit that at that point the gawkers started to move away as well.

I explained that when I was born in 1959 my father had to be informed of my 'birth defects" as he was the one in those days to say yes or no to my staying with my mother.  Had my mother been single then it would have been her father or the oldest male adult within her family/ extended family.

Being told that there was going to be no hope my mother remembered the nurses speech she had attended.  One on the traditional methods of cultures where talapies is.  They bound the feet as well as daily massage.  To this day if bandages are required they need to be firm [ very firm] and foot massage is wonderful to give as well as receive.

After about  three months of that came the longer length plaster casts.  The ones that went from my waste to my lower feet.  All of my foot on both sides were plaster casted as there was a metal bar between the feet 'splaying' them outward.  Of course the faster I grew the wider the bar.  The heavier this end of my anatomy got as well.

Why was I able to say that I was jealous.  A few weeks earlier I had seen a child with one plastic splint.  At that time I nearly cried.  I know I was emotional at seeing the process  having got that far.  Just the same as I am now there are tears welling in my eyes at the memory of this initial shock .

As  explained to the young couple they never have to go through what my mother had to go through.  Can you imagine her horror at here sisters swinging me upside sown like a rag doll.  Not from the feet themselves... from the bar.  Apparently this also meant adding extra weight to the foot / leg attachments as the plaster at that end would constantly be weakening.  Wonder why?

As a mother myself I checked my children's feet.  One son has the same protruding ankle and misalignment of bones. Yes I had taken him to the Dr wanting a  specialist appointment.  Only to be told I was seeing things that were not there.  That son would have been about two at the time.  When he was about seven I finally had enough money to take him to a specialist podiatrist.  Of course, this man made me cry as he accused me of not caring for my son.    I should have taken him sooner like when he was two etc.  At which time I sat down totally dejected.  You see when he was only eighteen months old a truck coming around the wrong side of the road impacted into the van we were in.  Me...well to the point that I am today  twenty-five years after the impact my survivor part of the brain is still just in the beginning of releasing memories.  More importantly it is still in the beginnings of sewing these memories together with understanding.   With the memories and understanding comes a certain knowledge. The type that in today's world behavior psychologists specialists like Danny Blackford are able to guide you with.

Having explained this I was extremely sorry that what and how I had approached the situation was unacceptable.  I was not being someone who was heartless.  Just joyful at their lack of pain like my mother had.  Joyful that this beautiful child had the freedom to experience crawling, getting into trouble and mischief simply because he could. The child could easily get into water, learn to swim at an early age. Yes, the feet were restricted in movement somewhat and yet I still was jealous as this was a terrific opportunity they had.  The man informed me that plaster with a bar was still going on.  They themselves were so thankful that their son had not required that.  I think they saw the look on my face when he mentioned that that procedure was still needing to be implemented.  I know I froze momentarily.

Writing this I am thinking that child would be about seven now.  He would not have to undergo the metal capers that I also had to wear once the plaster casts came off.

At about this time, the man asked would I like a closer look at his son's feet.
  The pram was already being swung around so that the opportunity was there if I wanted it.  I took up the offer.  So there we three were at the child level admiring the feet.  Being grateful that times had changed sufficiently so that this child had the freedom to have his feet gently corrected with something as lightweight and manageable as velcro and plastic.

You know God works in mysterious ways.  What I did not know was the lady and child had been to the local Doctors listening to a specialist report.  From there this lady was uset and had phoned her husband for emotional support.  He had been delayed due to getting tme off a work situation.  Even having people she knew around her at the doctors was not helping.  So out she walked with her child to enjoy the sun and wait for her husband.  He knew where to find her as when I came across her the phone call that the lady was on was her  telling him where they were.  He heard my initial comment and thinking I was making an underhanded comment  [read 'being insulting'] while himself was already highly combustible with everything that was tearing at him.  I think had I been a man instead of a lady at nearly fifty he would have punched me out.

You see For people who thnk that a passive aggressive  [ which appears in control at times] is being a smart aleck.  Making sniper comments.  That is 'a sniper' is one that is considered to be 'taking pot shots' at someone or something.  The comments are known as snipes. Snipes being insults masked in humor. The unfortunate thing is that besides just being happy and joyous this situation of mine would not occur again I was also extremely happy that another memory was surfacing.  That the post traumatic shock syndrome my brain was trapped with was releasing another memory.

Another area to point out is that there are different levels of hypersensitivity among the HFA's.  Often those on the Autism spectrum will repel each other.  Think Magnets.  What the NT's will see too late is that one Autistic Spectrum person cannot get along in the same space as another one.  Instant 'grrr' effect. The unseen thing is that one can read the other like a twin connection. The situation is not so much that a High Functioning Autistic person does not enjoy being forced to be upfront with their communications.
If the term Synesthesia means anything to you then you will have some degree of understanding.  Hink higher spiritually aware peoples.  Or those that people pay to tune into places where thought transferences are occurring.   many of these very sensitive people are now employed under officialdom and are taught ways to just not been seen.  Which of course, suits them very well as they are able to be alone within a world of their own.  The employers get the jobs done  literally to perfection.  Time is not an issue the end result is.

 hat is actually happening is that since the recipients of the observation have moralistically pigeon-holed the actions as being in the catalog of 'passive aggressive' behaviour.  The HFA is not actually being Passive Aggressive.  What is happening is that the recipient is placing the moralistic name tag onto a thing they are not understanding. For many of those on the Autism Spectrum, they are living with a very visible disability.  That of people who are not aware of what it is to have and be living with High Functioning Autism......an invisible disability.

 However we are not talking about this level of appreciation for certain actions and reactions.  Those out of this employment situation still are being judged through moralistic ideas of a people who have no understanding of what it is to be like this.  Rather than expand these gifts and talents the circle of influence is petrified the herd  has been infected.  Thus close down is required and that usually use to mean electric shock treatment, high medications and other screwball treatments.

Now things have changed somewhat. Instead, there is a watered down version of event  underway.  In 2014 the United Nations began to recognise the Autism Spectrum.  One day a year is an internationally recognised Autism day [ in March] This coincides with the festival of lights through the world.  The colour blue is now being recognised as being important.

The end effect of all while scenario that I started off telling you about is that this couple looked at their child, this wonderful little man in the pushchair, with new hope for something to go right.  As I was walking away the man called out with relief  in his voice.  He had watched how I walked now.  Then he pointed this out to his wife. You cannot tell that I have had Talipes.    While he held his  toddler in his arms he came up and shook my hand. Suddenly there I was with this little chap in my arms.

That was a beautiful moment of trust on the father's behalf.  What I never told the parents was the pain of having my nerves in both feet snipped when six years and fifty-one weeks old. The pain of not being able to have morphine or pethidine due to a reaction [ like, hay!, I caused the anaesthetist some major concerns while on the operating table] .

The child's distress at his parents nonacceptance distress of his condition and supposed pain called to me.  By helping one, the parents, communicate with the parents, in this case,  I was helping the other [ the child] be able to grow in an environment that would accept him

And I kept the child's High Functioning Autism as secret as well.  That would have been an invasion of the little man's privacy.  Nor did he want me to make it known at that time. High Functioning Autistics are born 'old'.  Their brain capacity is that of innocent children for such a small amount of time.  Usually, way before they are eighteen moths old an in tune person will know and have confirmed for themselves that the child's body has begun to take things conceptually apart and reason as an adult. That is what I mean about Synesthesia.

Should you have any questions that I may be able to assist you with then feel free to make them within the comment box.  Possibly you now have some idea of various terms to check out through the internet.  Pease do. Just be aware there are many sharks within the waters.   Check the authenticity of their presence first.

Peace be with you.

Sincerely

Susan



Resources:

with https://www.facebook.com/livingwithhighfunctioningautismcve4me
  Here's to you.

No comments:

Post a Comment